New York Post

My mom abandoned me because of my rare disorder — my son has it too

A UK woman who says she was abandoned at birth due to a rare genetic condition has devoted her life to caring for her son, Elijah, who has the same affliction. “My philosophy in life is you can either ...
Winston-Salem Journal

'Today's my 5K day!' — Boy with Apert syndrome greets runners at fundraiser to raise awareness of his rare genetic condition

As runners were about to begin the 5K, Cam Elliott was given the honor of seeing them off at the line and blowing the air horn to get things started this chilly Saturday morning. Elliott, 8, was there ...
Daily Mail

Geordie Shore star Aaron Chalmers' ex Talia Oatway reveals their son Oakley needs two more medical procedures - weeks after life-threatening diagnosis

The reality star, 38, welcomed Oakley, three, with Talia in 2022 and he was diagnosed with Apert Syndrome at birth. The NHS describes Apert Syndrome as 'a type of complex craniosynostosis that effects ...
KBTX

Madisonville rallies around one-year-old facing Apert Syndrome

MADISONVILLE, Texas (KBTX) - The Madisonville Consolidated Independent School District hosted a volleyball tournament to support Waylon, a one-year-old facing the challenges of Apert Syndrome. Waylon ...
Irish Sun

Geordie Shore star’s ex Talia Oatway reveals son Oakley needs TWO more procedures weeks after life-threatening diagnosis

TALIA Oatway has revealed that her three-year-old son Oakley is set to undergo even more procedures following his devastating diagnosis. The single mum shares Oakley – who was born with Apert syndrome ...