Inside Rebecca Alexander’s Awareness Campaign for Usher Syndrome

Today, on Rare Disease Day, we are honored to share a glimpse of the Mullarkey family’s story. In 2025, they were featured in our second national Every Second Counts commercial. During the making of that commercial, Rebecca Alexander sat down with Samantha and Alec Mullarkey to talk about their young son Michael’s unexpected diagnosis with Usher syndrome. Their story underscores why every second truly counts for families living with Usher syndrome and the importance of bringing awareness and tre

Spotlight on Usher syndrome 👁️‍🗨️ Today, we're highlighting how those with Usher syndrome may experience the progression of their vision loss. Did you know there are three general categories of Usher syndrome? They are even further subdivided into types based on the mutated gene causing the disease! You can learn more about Usher syndrome on our website at: www.FightingBlindness.org/diseases/usher-syndrome Video Description: Text reading “Here’s How Usher Syndrome Progression May Look For Some

Senses Lost: The Impossible Dilemma of Usher Syndrome, and Its Possible Solutions

Usher syndrome: for patients - Gene Vision

Usher Syndrome - SlideServe

NBC News’ Peter Alexander and sister raise awareness for Usher syndrome